Sunday, 20 May 2007

Day 2 (19 May 07) Jon's Hepatitis C Treatment

Sweated profusively during the night and woke up from time to time.
In the morning I felt woozy again but I do have my appetite and not not have any metallic taste in my mouth, which I had been warned about, and no itching. Before taking the treatment I had very itchy skin but since taking the treatment that has subsided significantly.

During the day I had a restlessly aching back and odd pains in the chest but could certainly manage the Saturday chores.
Spent time getting this blog up to date and will release it today or tomorrow - haven't worked out how to back-track on state on the blog. No matter.

I reflect on the equanimity with which I've taken the whole sequence of events since my first diagnosis. I don't feel angry, bitter or afraid - it's just something that has appeared and has to be dealt with day by day. Maybe I'd feel different if I were younger? Still, I would like to know how I picked up the disease.

The main annoyance has been coming off the alcohol and if I've whinged about anything, it's that!

I can't speak too highly of the London-based Hepatitis C Trust. Charles Gore and his team are doing a fantastic job informing, reassuring, alerting, counselling and campaigning. Before treatment I went to several self-help groups organised by the Trust, meeting a very wide and eclectic range of people with Hepatitis C, and with different genotypes of the disease. The support groups have all been very positive and a great preparation for the treatment.

It is only those with the illness who can really appreciate what you are going through. Several of us in the group are starting treatment around the same time so there will be helpful points of comparisons, although, as I cannot stress enough, every person has a different experience, symptoms and reactions. It's a very idiosyncratic disease!

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